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Sep 3rd´10 |
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Resources
If you are living with ALS and you are a resident of New Brunswick, please register with the ALS Society of NB so we may help you through this journey.
There are many reasons to register with the ALS Society of NB. First, you must be a registered client in order to qualify for funding through the Benevolent Fund, the Equipment Fund, or through Support for Champions. Without registering you will not receive important program surveys, event information and/or receive the quarterly newsletter.
Also, you should be aware that the government relies on the ALS Society of NB to provide accurate statistics on the number of clients living with the disease. This can have a profound affect on their funding decisions. In the last twelve months we have serviced 69 clients, but we know there are many out there who are not being counted. Each person living with ALS deserves to be counted, to be heard. Help us do that for you.
RESOURCES:
Download the most recent issue of the ALSNB Quarterly, our living well bulletin. Available now in French and English.
The following resources are available on loan in the Stan Cassidy Centre library or by mail at our office by calling toll free 1-866-722-7700 or send us an e-mail.
The following books can also be purchased at Chapters Book Stores by using the ISBN number to order.
BOOKS
A Manual for People Living with ALS provided by ALS Canada is free with your c lient registration to the ALS Society of NB.
Tuesdays with Morrie by Mitch Albom - 1997
ISBN: 0-385-48451-8
Closing Comments by Brian A. Smith - 2001
ISBN: 1-894667-06-9
Amyotrophic Lateral Sclerosis by Robert G. Miller, MD, Deborah Gelinas, MD, Patricia O'Connor, RN - 2005
ISBN: 1-932603-06-9
The Courage to Laugh by Allen Klein - 1998
ISBN: 0-87477-929-4
Communication and Swallowing Solutions for the ALS/MND Community by Marta S. Kazanduian - 1997
ISBN: 1-56593-808-9
Cries of Silent by Evelyn Bell - 1999
ISBN: 0-9685383-0-4
Waking up by Terry L. Wise - 2004
ISBN: 0-934793-08-5
In Dreams by Elizabeth Grandbois - 2002
ISBN: 0-9731956-0-6
Making Sense out of the Senseless by The McFeat Family ALS Journey - 1999
ISBN: 0-9685394-0-8
Twilight of a Dancer by Rosemary DeGraff - 1987
ISBN: 0-920541-41-0
Now Available Online - www.als411.ca
The ALS Society of Canada has created als411, a support and information program designed to help children who have a parent living with ALS.
We know that having a parent with ALS can change your life and we want to help you with this change. Having a parent with ALS is not easy and life may feel different around your house. For a while.
We can't make the ALS go away, but we can try to help you adjust to your new life. Even though your parent has ALS, you can still be happy and enjoy your childhood. Please use this web site to learn more about ALS and ways you can give and get support.
Also, if you have ideas for what you want to see on the als411 web page, please let them know! Also, if you have a story you want to share about your family, send it to als411@als.ca.They are waiting to hear from you.
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