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ALSNB Services
This is your guide to resources and services available for:
What services do we provide?
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Information and referral for people with ALS, caregivers, families and communities
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Volunteer home visitors (where available)
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Funding Support for Equipment & Assistive Technology
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Quality of Life Assistance through the Benevolent Fund
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Educational materials about ALS and the support needed by persons with ALS (for healthcare providers, students, people with ALS, and family etc.)
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Support for Champions
Information, Referral and Home Visits:
Individuals with ALS and their families are provided with information about ALS, and the services that are available. They are also provided with help in navigating through the health care system and in accessing equipment and services in a timely fashion. Staff members conduct home visits to provide information and support, and stay in touch by phone and E-mail.
Equipment and Assistive Technology:
Mobility devices such as power wheel chairs and scooters, and communication equipment such as laptop computers and electronic speech devices, give freedom of movement to the paralysed, and a voice to the silent. These items, as well as things such as hospital beds and lifts are all things that a person with ALS will need during the course of the disease. ALS is a rapidly progressive disease and individuals cannot afford to wait for the equipment they need.
The ALS Society works with its clients to access needed equipment in a timely matter. This is done in conjunction with Easter Seals NB who manage our equipment bank, and by working with families and insurance companies to fund the equipment, and exploring the opportunity to support any funding shortfall should our resources permit. We strive to answer all equipment requests within ten days. See above for a link to more information about our equipment funding program.
Please see the link above (Making an Equipment Request) for more information on this program and the type of equipment available.
Benevolent Fund:
The objective of the ALS Society of New Brunswick (ALSNB) is to support people living with ALS, their families, and caregivers. To do this we offer all registered clients of ALSNB the opportunity for funding through our Benevolent Fund.
The benevolent fund was created for requests that do not meet requirements of the equipment funding or the Support for Champions fund. Any registered client of ALSNB can request up to $1,500.00 annually to support them in achieving a higher quality of life. All requests will be considered on a first come, first serve basis, and is offered only as funds are available. The maximum funding available through the Benevolent Fund’s is, with few exceptions, $1,500. The Application Form is available in PDF and Word format.
Awareness and Education:
To beat this disease we must make people aware of it. The society does this by publishing books, producing videos, maintaining a website, and promoting the cause at special events. The society also works with medical professionals and caregivers to make sure they know about the disease and how to deal with it.
In the spring of 2006 over 300 people including clients, General Practitioners, Nurses, Speech Language Pathologists, Caregivers and Families attended education sessions held across the province. In November 2008, the first ALS Atlantic Conference was held in Moncton, New Brunswick, reaching out to this same group of people. In November 2008, ALS Society of Canada also launched a new set of public service announcements, intended to make people aware of ALS, and encourage them to take action – volunteer their time or make a donation.
Support for Champions:
The devastations of ALS on the family unit are well documented, as no member is immune to the perils of such a devastating illness. The Support for Champions Fund promotes a healthy passage for the children of ALS families by providing them with a non-interrupted journey through a difficult period. Applications can be made to the Fund for financial assistance for tuition at any recognized educational institution anywhere in the world. Help is also available for expenditures for the cultural development of the child through the participation in extra-curricular pursuits, especially sports.
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