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ALS Related News and Information

For news and information about ALS Research, awareness programs, fundraising events and information related to ALS we encourage you to visit the ALS Society of Canada website at: www.als.ca  

RECENT NEWS:


Tony Proudfoot passes away - December 30, 2010

John A. "Tony" Proudfoot (1949 – 2010) was an All-Star defensive back in the Canadian Football League, teacher, coach, broadcaster and journalist. He was a Grey Cup champion twice as a player, and twice as special consultant to Montreal Alouettes Head Coach Marc Trestman in 2009 and 2010.

In 2007 Proudfoot was diagnosed with Amyotrophic Lateral Sclerosis, a terminal illness. He wrote regular updates on his deterioration in the Montreal Gazette. He set up the "Tony Proudfoot Fund for ALS research" at the ALS Society of Quebec, which has raised $500,000 for research into the disease. The courage, grace and determination during his illness was widely admired. Proudfoot died in Montreal on December 30, 2010 at the age of 61.

Below is a link to the Montreal Gazette, from which you can link to all of Tony's stories. As well below, there is a PDF of a recent letter to the editor in the Moncton Times & Transcript from the ALS Society of New Brunswick, thanking Tony and his family for sharing their story with all Canadians. 

www.montrealgazette.com

Letter to the Editor - ALS Society of NB






A 
Victory
 for
 Veterans
 with
 ALS

 (November 2010)

The
 Honourable
 Jean‐Pierre 
Blackburn,
 Minister 
of 
Veterans 
Affairs
 Canada,
 announced
 on

Friday 
October
 15, 
2010,
 that
 veterans 
with
 ALS
 will
 now
 be 
eligible
 for
 increased 
benefits.


Minister
 Blackburn
 made 
the
 announcement 
at
 a 
press
 conference,
 where
 he 
was 
joined
 by

Pierre 
Poilievre,
 Member 
of
 Parliament
 for 
Nepean‐Carleton,
 David 
Cameron,
President
 and

CEO 
of 
the
 ALS
 Society 
of
 Canada, 
and 
veteran 
Mike 
Watson,
 who 
has 
led
 a 
courageous,
 six‐year
 battle 
against
 ALS.

 Read more...



Did Lou Gehrig have Lou Gehrig's Disease?

On August 17, 2010 both the New York Times and the Toronto Star featured an article suggesting that Lou Gehrig may not have had Lou Gehrig’s disease (ALS).  The article were written in response to a study published in the online Journal of Neuropathology and Experimental Neurology which suggested that the clustering of TDP-43, that has been identified to be involved in ALS and frontotemporal lobar degeneration, is involved in the head injury as well.

Attached is an article written by ALS Canada’s science writer Katie Moisse, PhD, reviewing the study. Please take some time to review the article.



SUPPORT FOR CHAMPIONS

The devastations of Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease on the family unit are well documented, as no member is immune to the perils of such a devastating illness.

Gilles LeBlanc was diagnosed with ALS at the age of 36. At the time, his sons were seven and four years of age. Gilles’ foremost wish was for both of them to enjoy a non-interrupted journey through childhood, despite his devastating illness. With the aid of his many friends and a wonderful family, his children participate in numerous sports and cultural activities while growing-up.

“The emotional scars of a sick parent are enough to bear, without having them sacrifice their very own childhood” says Gilles. As a result, he created a special fund in conjunction with the ALS Society of New Brunswick to give a helping hand to every child of families touched by this terrible illness. His family and friends vow to build upon his dream of seeing every child of ALS sufferers in Canada, flourish through childhood.

Suppport for Champions is there to help with Bursaries and After-school Activities. Check out the link on the right for more information about the program, or download an application form now.
 

Access 2 Entertainment

Launched in December, 2004, the Access 2 Entertainment program seeks to help businesses provide quality customer service to customers with disabilities. Through the program, people with disabilities who require a support person carry a personal Access 2 Entertainment card with them.

The card indicates to the ticket seller that the individual does indeed require the support of an attendant. The card provides free admission (or a substantial discount) for the support person at all participating entertainment venues. The person with the disability pays the regular admission fee.

In order to obtain a card, an application form must be submitted by a person with a disability who requires the assistance of a support person. The application must be authorized by a registered health care or disability service provider. Easter Seals Canada administers the application and delivery of the card. (download pdf for more program information)





ALS Society of Canada - Public Service Announcements

In 2008, ALS Society of Canada recently released a  series of public service announcements, also called PSA’s. PSA’s are an important tool for the ALS Society of Canada to raise awareness about what ALS is and its devastating toll on the individual and family. They also encourage people to help – donate or volunteer – to the ALS Society. The PSA's have been produced in a 30-second and 60-second format and will be played on local and national television over the next few months. You can view the English and French versions of the public service announcement for yourself on the ALS Society of Canada website.

     


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